The woman contracted a fatal infection caused by a brain-eating amoeba and died eight days after developing symptoms.
A Texas woman died from an infection caused by a brain-eating amoeba days after she cleaned her sinuses using tap water, according to a Centers for Disease Control and Prevention case report.
The woman, an otherwise healthy 71-year-old, developed “severe neurologic symptoms,” including fever, headache and an altered mental status, four days after she filled a nasal irrigation device with tap water from her RV’s water system at a Texas campsite, the CDC report said.
She was treated for primary amebic meningoencephalitis — a brain infection caused by Naegleria fowleri, often referred to as the “brain-eating amoeba.” Despite treatment, the woman experienced seizures and died from the infection eight days after she developed symptoms, the agency said.
An investigation conducted by the agency found that the woman had not recently been exposed to fresh water but had performed the nasal irrigation using non-boiled water from the RV’s potable water faucet “on several occasions” before her illness.
The potable water tank, the investigation found, was filled before the woman bought the RV three months ago and could have contained contaminated water. The investigation also concluded that the municipal water system, which was connected to the potable water system and bypassed the tank, could have caused the contamination.
A bit misleading to put so definitely “tap water” in the headline when this was 3 month old RV water.
What’s the bit about the municipal water system there for? Aren’t they saying she could have used either
Point is, if you’re gonna flush your nose, boil the water at least. FFS.
That’s a lot of important context
It was campsite water actually. If you read closely.
So not just tap water but her RVs tap water. The attempt at scare-mongering - tap water - like it could happen to anyone is annoying.
You can’t use tap water straight for Neti pots. I’m pretty sure every single neti pot tells you to boil the water first.
I hope it tells you to let the boiling water cool, too. I feel like that’s an important step.
… cue the optometrist meme
I found it, sorry for the delay friends
What is the optometrist meme?
Optometrist - “So these are your new contacts. If they irritate your eyes, you can clean your eyes with boiled water”
He grabs me and makes me look him directly in the eyes.
Optometrist - “Look at me. Look at me! Boiled water. Not boiling water. Water that has been booked than cooked. Understand?”
- it’s a thing from tumblr I believe, it’s longer and from the point of new off the person being spoken to.
*boiled then cooled. This phone is a nightmare for typing.
Booked then cooked sounds like a good album title ngl.
… booked than cooked?
Boiled than cooled. My phones autocorrect is a nightmare where I had to type most of this a single letter at a time
I updated my comment to have the meme
It doesn’t clean the sinuses as well. I personally run the boiled water through my soda stream, then directly into the face holes.
Which soda stream syrup do you use?
Maple.
I’m mentally hearing the blart from my jet as it hits peak carbonation, and mentally seeing the spray of water out the other nose and my god sir, you are a dilophosaur
The article does (which is a quote from the CDC), so the fact that the first comment got 34 updoots and is labelling this as fear mongering makes me sad that lemmy is becoming reddit faster than I thought
Way more people read the headline than the article itself, and the writers know that, but decided to only and specifically call it “tap water” in the headline. They knew it’ll get more clicks, and seemingly didn’t care about the people who will come away from it with a misconception.
We talkin’ ’bout the title. “… her RV’s tap water” at the end would be enough.
It tells you to use boiled water.
Yes, it is a pretty common step to let boiled water cool before consuming it in any regard.
What’s the difference between a neti pot and taking a shower? I’m pretty sure I get water up my nasal cavity every time I shower. Is the neti pot warning a cya thing or is there a greater risk?
Big difference between a little water in your schnozz and a deep irrigation of your sinus cavities.
Use (cold) boiled or distilled water
According to a search I performed several years ago (meaning that my information may be outdated and that I’m no expert), the relevant bacteria have never demonstrated the ability to travel through droplets such as go through shower heads.
Its the same amoeba you can get swimming in lakes. It doesn’t happen every time but it CAN happen. It is grossly ignorant to not be cautious of it
Is it more likely to come from reservoirs then it is from wells that tap the water table?
Possibly I think? I personally just wouldnt risk it. All it takes is once.
You’re much much more likely to die from your preferred transit method to the lake than to get an ammeoba from it.
For that matter basically every food you eat has a higher likelihood to kill you. From bacteria, contamination, improper storage, improper cooking, even choking. These are all significantly more likely.
My point isn’t to make you too afraid to eat, but to explain why it’s not “grossly ignorant” to not be cautious of it. It’s essentially a non-concern. Even not putting sunscreen on every single day is a bigger risk taking activity than the odds of getting a brain ammeoba at a lake.
My brother in christ. Its such an easy thing to prevent. Just because its not a massive safety risk doesn’t mean its not still dangerous. Some people have clean enough tap water and will be fine. Others that dont will read what youve written and think “oh it wont happen to me” and not take any precautions. Its not like you have to avoid lakes or using neti pots. Wear nose clips and use known sanitized water.
Everything you mentioned about food by the way is something that can be prevented
Your comment seemed to imply your solution was to never swim in a lake. Obviously you should boil your neti pot water. There are a lot of reasons to do that. Wearing a nose clip is plenty reasonable. I truly thought you meant never swimming.
Everything you mentioned about food by the way is something that can be prevented
That’s not true. I can’t prevent a company from making a canning mistake. I can’t prevent a company contaminating food with a wide variety of things from bacterial to chemical. Choking is by itself accidental, I doubt you’ll find many choking victims that were trying to choke and die. I don’t inspect the kitchen and practices of every restaurant I eat at. The fact of it is most of the things related to food safety are out of the hands of the consumer. Short of preparing everything yourself from scratch you can’t prevent these things from happening. Most deaths related to food safety are caused by producer mistakes, not consumers.
Well, they’re not sure if the water came directly from the RV tank or the local water supply, so it certainly could have been tap water.
The potable water tank, the investigation found, was filled before the woman bought the RV three months ago and could have contained contaminated water. The investigation also concluded that the municipal water system, which was connected to the potable water system and bypassed the tank, could have caused the contamination.
The agency stressed the importance of using distilled, sterilized or boiled and cooled tap water when people perform nasal irrigation to reduce the risk of infection and illness.
Sounds like the general idea is also just don’t use tap water directly out of the tap if you want to run water through your sinuses (which is where these infections come from). They aren’t saying that tap water is unsafe to drink. I don’t see this as fear mongering at all.
It could, with warming temperatures the bacteria is moving north. Showing up in areas unfamiliar with it
But you’re way more likely to get it by swimming and just don’t pour water up your nose
Buy Nestle’s hidden-branded renamed shit instead! That’s not literally just stolen tap water!
I’m seeing many, many comments from people who have never used a neti pot or have questions. There are some basic answers, from a man who has, at times, safely used a neti pot.
You only use a neti pot with distilled water or previously boiled water. I use water fresh off a boil, cooled down just enough to where my nose can tolerate it. You can use that expensive gentle salt or table salt or sea salt, anything is fine.
You guys have no idea how satisfying it is when your head is all stuffed up with snot, blowing with a tissue is impossible…and you cycle some warm saline solution in your sinuses & a massive glob of 3-4 tablespoons of snot effortlessly glides out your other nostril into the sink & you can breathe again. It is a disgusting miracle when you’re sick, it is amazing.
Let’s clarify a few things – always use distilled or previously boiled water, as the brain-eating amoeba is present in most of North America’s waters. It can potentially survive water processing plants, and possibly domestic hot water tanks. The brain-eating amoeba can only survive in warm, moist environments…like your sinuses right next to your brain…it must be forcibly injected into there, so no cannonballs into the lake. No snorting untreated lake water. Normal swimming is okay.
You can use the neti pot too much. I was using it to aggressively clear out my sinuses for a year with limited success, and it turns out I am allergic to a mold or fungus at my workplace. Very frequent use of the neti pot only irritated my nose further, causing it to become inflamed (but not dangerous), and it would never ever cure the root problem: allergies. That was only fixed by pills & anti-histamine spray.
There is no need to be afraid of the neti pot, or the brain-eating amoeba, so long as you use the neti pot responsibly. Correctly.
It’s always been tempting to try a neti pot as my sinuses are always clogged and no amount of trying to blow my nose brings anything out
But stories like the amoeba scare me to hell and back, even if I did everything right it would still scare me.
So I’m an environmental microbiologist. If it’s any consolation, these incidents are very rare despite people doing similar things frequently. Even if you do snort water that’s home to Naegleria fowleri, infection isn’t common. If you take basic precautions, you really don’t have anything to worry about.
As a former permastuff allergy sufferer, I can’t recommend enough trying out triamcinolone (nasacort). I had tried nasal sprays in the 90s and early 2000s without any luck. About 5 or so years ago, my allergist recommend I give it a try again as a lot of formulas have come around since then and could work for me now. I couldn’t believe it, no more permastuffed and there’s smells everywhere. Learned that I love the smell of star jasmine flowers.
For me, a puff in each nostril in the morning and another puff as needed when blowing my nose doesn’t suffice (which is rare) has turned this perma-stuffed allergy sufferer into a not-perma-stuffed person.
I had a similar discovery a few years ago and now use Nasacort daily, but I find that all that mucus just goes down my throat instead of hanging around my sinuses like usual. Now it’s a battle between stuffy nose or clearing my throat constantly
you can buy medical saline from the grocery store.
To use a neti pot you use a saline solution. If you don’t trust the water you got at home (boiled first, naturally, both to sterilize and allow for easier dissolution of the salt), you can just buy a bag of NaCl solution in any pharmacy instead.
Just put the sealed bag into a pot of warm water first to bring it up to room temperature or slightly above. Flushing your sinuses with cold water ain’t fun.
Everything made sense at “Texas”.
I use saline I buy at the drug store for something like $1 a liter. No brain amoebas for me!
Neti pots and similar have very, very clear warnings that the water needs to be sterilized.
Is it the powder that I’m dumping into the water every time? I was just doing it to follow instructions. If it’s because of this, then thank goodness!
[edit]I was definitely wrong, and there are some good guides on getting distilled water on YouTube! check 'em out[/edit]
That powder is salt and will not sterilize the water. Used distilled water.
Doesn’t boiled filtered water work fine too?
To be fair: some things you shouldn’t cheap out on (as noted by the deceased woman in this post).
Is that cheaping out? How do you know for certain that supposedly distilled water was properly distilled, stored, and never contaminated before or after opening?
Bonus risk if you live in the United States where they’re gutting federal safety agencies
I mean… I get the FDA isn’t the trustful advisory it once was, but if I had a few dollars to choose between the “sterilized” gallon jug and a nasal blast from a Texan KOA campsite, I know what’d I’d choose.
I’d go with neither and use water I personally filtered and sterilized for the sake of certainty and safety even if it came from a jug labelled “distilled”.
If you’re gonna do that level of paranoia, the easy fix is to boil or distill your own water
Reread my post lol
Boiled, yes. Filtered…well there’s so many different filtration methods of varying intensity the safest answer is “no”
Because someone’s gonna use a britta jug…
Filtered and boiled, not or.
Don’t need to both
I’m gonna and you can’t stop me!
It does.
From this point on I absolutely will! Thanks!
It’s saline. So salt and baking soda
This wasn’t the tap waters fault. This was the rv water tanks fault, most likely. Most people pretty much never clean\sanatize them.
Neti pot instructions typically state you need to use distilled or boiled water. You should follow these instructions regardless of the quality of your municipal water. It does not hurt to do so
It does not hurt to do so
Unless, like another commenter, you panic and forget to let the boiled water cool enough!
Pro tip, boil water and put it in the freezer for later! /s
Squirt ice up your nose!
But for real, boiling water and keeping it in a container for later is a common strategy in many places.
Those icicles reach places even a pinky can’t hit
Yeah. And q-tips say not to use them in your ears. Everyone wants to avoid a lawsuit.
Yea…they do…. Because you can fuck up your ears at worst and cause an earwax impaction at best. Im pretty surprised theres so much ignorance on the health comm
My friend, i have some baaad news for you
I really don’t think you do. It’s an extremely rare event in treated public water systems in the US. The amoeba aren’t really suited to survive in that water.
It’s been found in drinking systems in multiple countries, including Australia and the US.
But generally speaking, given how the sinuses are an express highway to the brain, you want anything you drench them with to be utterly sterile. Tap water isn’t anyway by its nature.
As a fellow American who hasn’t had to put up with this nonsense in my state but still lives in this era of fascist billionaire overrun, I now have a better idea what it must feel like to live in Texas. But Jesus fuck, fix your
waterutilitiesgovernmenteducationsocietyshit.Gotta say, brain-eating amoebas are one of my fears.
Irrational fear is one of the first symptoms
Oh good, this is a very rational fear so we should be safe.
If you read the fucking instructions you’ll find it says use distilled water. But why read the instructions on a medical device when you can get your brains eaten instead?!
To be fair, I made this error before. I was like why do they have those dumbass neti pots when you can just use shower water for free? Then that night I read about brain eating amebas and freaked tf out. In a panic I tried to boil some water to rinse my sinuses with, and since I was so panicked, I didn’t wait long enough to let the water cool completely, and I’m pretty sure I burnt my sinuses and maybe even the part of my brain that’s right there. I had a splitting headache for like a month and thought I was gonna die n had the brain eating ameba. I think in hindsight what’s more likely is my sinuses and everything were burnt and my body was freaking out trying to fix it. 0/10 do not recommend.
Use a neti pot and use boiled or distilled water. Don’t be a dummy like me.
I won’t, I’ll be a different kind of dummy.
Your Alzhaimer’s chance just increased dramatically.
I’m very aware. It was the dumbest shit I’ve done in my life. It absolutely fucked with my short term memory and even my speech. It’s taken years to feel semi back to normal. I still don’t feel all the way like I used to unfortunately, but I try not to dwell on it.
You just gave me a secondhand headache. Please be careful.
I only clean my head holes with hard liquor.
The potable water in the Deregulated Texas Oblast is safe. Right? Did she have United Healthcare supplemental insurance?
she filled a nasal irrigation device with tap water from her RV’s water system at a Texas campsite
oh, that sounds gross. Way to many points of possible contamination.
Isn’t precaution number one when using neti pots to never do it with plain tap water?
Yes, but precaution number one when driving or riding in a motor vehicle is putting on your seatbelt and tons of folks dgaf about that either
it’s normal to use tap water anyway.
“Normal” and “supposed to” don’t always line up.
Yes.
This is why I only use river water
Blows my mind, all the people that use anything besides freshly filtered boiled and/or filtered water for this.
It blows my mind, that the richest country in one of the most developed areas on the globe is unable to provide save tap water.
tap water from her RV’s water system
So basically water from a cistern. Not the public water system.
Even if it was tap water, it’s safe to drink and cook with, not necessarily to wash your frontal lobe with.
In most if not all places, the municipal tap water is perfectly safe (old lead service lines, neglected areas, and occasional local boil-water advisories notwithstanding). Private wells are another matter, but there’s often little regulation on those, but there is lots of guidance available.
N. Fowelri requires something like 30 times the standard chlorine dose to kill. In municipal water systems, the most common source is biofilm that builds up in pipes in the water system and more often in the home/customer-side service line. This is especially true for older homes and poorly maintained apartment buildings.
I know it’s all the rage right now to shit on the US when and where one can, but our water system isn’t the place to do it.
Refs:
old lead service lines, neglected areas, and occasional local boil-water advisories notwithstanding
I know it’s all the rage right now to shit on the US when and where one can, but our water system isn’t the place to do it.
It sounds like the US water system is exactly the place to do it. We have neglected areas all over the place, and yet the EPA is being gutted and hamstrung and the HHS is trying to ban flouride instead of doing anything about vulnerable towns and schools that are just waiting to turn into Flint.
apparently she was using stale water thats been sitting around for quite some time, this breeds bacteria, and amoebas. amoebas love to eat bacteria so they are found where tons of bacteria are. this is the case for legionaries disease, the bacteria love to infest amoebas.
the other kind of amoeba that can similar symptoms that also resulted in a brain eating form, is balumuthia amoeba.
Legionnaires disease is actually an atypical bacteria that is commonly found in water and HVAC systems, separate from any kind of amoeba.
Dude, i live in a city with some of the best tap water in the world. That has fuck all to do with this.
Why? Countries become rich by greed.
I bet every “richest country in the world” in the history of earth had horrible poverty. How else would they become the richest country in the world? It’s kinda an expected prerequisite
Blame it on the idiots banning Flouridation and the like. Sadly, there’s likely a large overlap with Netti-pot users.
There’s useful paranoia, and then there’s this.
Whoa whoa whoa, a neti pot isn’t some high energy life changing quartz or a magnetic bracelet that’s supposed to realign your chacras. Neti pots have real, legitimate medical use and are recommended by many ENTs and allergists for a range of medical conditions. They also have clear warnings to use sterile water.
They should be washed occasionally, too.
Nailed it with your last line.
Well it shouldn’t. We’re taking a lot of knowledge for granted when normally, we aren’t all that bright in the first place.
A lot of the theory learned isn’t met in practice, so it’s difficult to understand or recognize it.
I mean, come on, how often does ‘brain-eating amoeba’ even come up as a subject in day to day life? Hard to pay attention to stuff that doesn’t frequent your area of activities.
I see stories about it at least once a year, and its the sort of thing that sticks out, even though I rarely flush my sinuses.
Well, I don’t. It’s the first time in 7 to 10 years since I last heard of it. It’s not common at all for me and doesn’t even cross my mind because I lacked reoccurring contact with this kind of information to have it a priority.
This difference in knowledge is also a difference in awareness , so it’s not that baffling that most people don’t share the same kinds of wariness.
We don’t know the same things so we pay attention to things in separate ways.
I have heard of getting brain eating amoebas, mostly from swimming in lakes or still water. I think this is the first time I’ve heard about them coming from using a nettle pot. Looking it up, it looks like a lot of cases come from nettle pots, but “a lot” is relative. There are only a dozen or so cases a year from any source. I still wonder if any of those cases really come from city water or if they are from well and cistern water like this lady used. Either way, following the instructions that come with the pot would have saved those people.
They theoretically could come from tap water. Reservoirs of treated water can be open to the atmosphere, and accessible to wildlife. Chlorine and dilution mitigate most of the risk, but not all of it.
Yeah, but i also dont put water up my nose to cleanse what my mucous membranes already do.
Blows my mind
Not as much as it blows their minds.
Save me a seat at your table in Hell.
They even make nasal irrigation devices with built-in filters! Mine’s a store brand from a local pharmacy.
You want sterile, not filtered, water
Turns out mine’s not store brand, it just looks generic enough to be store brand. They claim it meets CDC recommendations for nasal rinsing with tap water. ¯_(ツ)_/¯
Yes. Using tap water is safe.
And you’re supposed to boil the tap water
Not according to the literature that comes with the device.
Do they say you don’t have to boil it?
Or do they just not explicitly mention tbr obvious?
The built-in water filter meets the CDC recommendation for nasal washing with tap water*. This provides peace of mind, while also eliminating the cost of bottled water or the inconvenience of boiling and pre-filtering tap water†.
†The Micro-Filtered System is intended as a final filter for tap water that is known to be safe for drinking.
*This product has been tested and certified to meet NSF/ANSI Std. 53, a drinking water standard for cyst reduction.
[Step 5] Fill the bottle with warm tap water to the 8 oz mark indicated on the bottle. Make sure the white check valve located on the shoulder of the bottle is present and in place. Test water temperature before using. Use saline solution promptly, do not save or store for future use.
Source: PDF instructions from the page I previously linked to.
Campsite water system for RV’s. I’m wondering if it was well water, and wasn’t chlorinated?
Very likely, but you’re not even supposed to drink, let alone netipot yourself, the water directly from the water tank in a RV even if it was filled with chlorinated water. Sitting water always has the potential be become contaminated.
You can’t drink the water you put in a RV? Never heard that before.
A lot of newer nicer RVs do have filters that feed purified water to one of those little taps that’s next to the regular dish tap so you can drink that water. But you 100% do not want to drink unfiltered water from the tank.
I’ll definitely keep this in mind if I get one in the future (many years away still but something I was considering). Short of it being a dire warning in the manual or something I might not have known, so thanks!
For retirement/travel or full time living? Either way I encourage you to if you’ve been thinking about it. Its not for everyone but I do think its for the majority of the people that even think about it. There will be challenges, things to fix, obstacles to overcome. But its a level of freedom most people will never experience. It takes a leap of faith but I doubt you’ll regret it.
Also in the winter you need to winterize your water system which means putting antifreeze in all the water(which you don’t want to run through a filter). Its nontoxic so you can still use it for washing and theoretically drinking. But most people I know just buy gallon jugs of water for drinking year round. Its a simple and cheap solution so you have tasty sterile drinking water year round.
It’d be for spring/summer/fall trips. My parents had a pop up camper, and later a ~30ft trailer that we’d go take summer trips on, and I enjoyed it then. I do go camping a fair amount right now in the summer, a good 15-20 nights each year. I imagine I’d be able to do more with the creature comforts a trailer would provide.
The thing is I want to be able to do it with an EV which you can do with a small camper right now, but getting an EV that can adequately tow and a trailer will be a big investment, so it’s some years away still. But at least by then I imagine they’ll be able to tow better as well. Also charging infrastructure for trailers where you don’t have to unhook should be more prevalent in the upcoming years as well.
Edit: Also those new trailers coming out with a battery pack and a power train to help drive look really cool, but damn that would get really expensive. Can’t wait for battery prices to keep plummeting!
